Advocacy Center

New! Watch Ceo Stanfort perry’s State senate testimony on barriers to Employment

Your advocacy helped secure meaningful investments in disability services as Governor Hochul and the New York State Legislature included a 2.7% Targeted Inflationary Increase in the enacted state budget. The budget also includes flexible attestation language, offering providers with greater flexibility to use these funds where they are needed most to support people with intellectual and developmental disabilities. We are grateful to our elected officials for recognizing the value of these essential services.

Federal Issues to Consider

Federal funding has its own distinct process and priorities. Below are the priorities our community is seeking to advance. If you’re interested in learning more about the basics of federal funding, Medicaid, IDEA, and hold a successful meeting with legislators. Check out these videos from the 2026 Disability Policy Seminar.

• Federal Bill Recognizing DSPs Advances

  The bipartisan Recognizing the Role of Direct Support Professionals Act has advanced unanimously out of the Senate Homeland Security and Governmental Affairs Committee—a major step toward creating a dedicated federal occupational classification for DSPs. A distinct classification will improve data on the workforce, helping inform policies that strengthen recruitment, retention, and investment in the professionals who support people with disabilities.

  Support the Recognizing the Role of DSPs Act

• Stay Informed: Justice Department Memo on Community-Based Services

  The U.S. Department of Justice recently issued an opinion on community-based services outlining the Executive Branch’s interpretation of the landmark Olmstead decision. Read responses from NYS OPWDD Commissioner Willow Baer and The Arc of the United States to learn more about how this opinion could shape disability policy moving forward. Also, check out this one-pager from NYDA about how we can continue to protect the right to community-based living.

• Take Action: Protect Medicaid Access for People With Disabilities

  *In less than 3 minutes, send lawmakers an email asking for their support and plans to ensure Medicaid-funded home- and community-based services remain available for Long Islanders with intellectual and developmental disabilities (IDD).

• Protect Disability Rights in Education

  Students with disabilities are public education students first. Recent federal proposals would move key special education and civil rights functions out of the U.S. Department of Education, raising concerning about consistency, oversight, and accountability for students with disabilities.

  Learn More
  -The Arc US, “Moving Special Education and Civil Rights Out of Education Department Risks a Patchwork of Rights for Students With Disabilities”
  -The EDU Ledger, “Civil Rights and Disability Offices Relocated from U.S. Department of Education in
  Broader Federal Restructuring Effort”

  Take action to protect disability rights in education

• Support SSI Savings Penalty Elimination Act
  The SSI Savings Elimination Act was recently reintroduced. For over 30 years, the Supplemental Security Income (SSI) asset limit has been set at $2,000, while the cost of living has risen dramatically. This outdated rule leads to millions of people with disabilities living at the poverty line due to an inability to save for emergencies or a more financially secure future.Take Action to support ssi savings penalty elimination act
• Advance Federal Recognition of the DSP Role
  The “Recognizing the Role of Direct Support Professionals (DSPs) Act” (S.3211, H.R. 6137) would require the federal Office of Management and Budget to consider updating the Standard Occupational Classification (SOC) and recognizing the DSP role as a distinct profession. This would lead to data collection and ideally more robust funding.Send an email to your member of Congress